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Health Charities

Macmillan Cancer

Macmillan Cancer Support
One in three of us will get cancer and it’s the toughest thing most of us will ever face. If you’ve been diagnosed with cancer, or a loved one has, you’ll want a team of people in your corner supporting you every step of the way. Macmillan provide practical, medical and financial support and push for better cancer care.

Marie Curie Cancer Care

Marie Curie Cancer Care is a UK charity dedicated to the care of people with terminal cancer and other illnesses. Over the financial year 2010/11, we reached a total of 31,799 patients

Youth Health Talk

YouthHealthTalk
Youthhealthtalk enables young people, their family and friends, and professionals such as doctors and teachers to understand young people's experiences of health, illness and life in general. The website feature real-life accounts of issues such as effect on work and education, social life and relationships, consulting health professionals and treatment.

Data Sharing

How we keep your records confidential

Everyone working for the NHS has a legal duty to keep information about you confidential. We have a duty to;

Maintain full and accurate records of the care we provide to you

  • Keep records about you confidential and secure
  • Provide information in a format that is accessible to you (e.g. large type if you are partially sighted)

 We will not share information that identifies you for any reason unless:

  • You ask us to do so
  • We ask and you give us specific permission
  • We have to do this by law
  • We have special permission for health or research purposes, or
  • We have special permission because the interests of the public are thought to be of greater importance than your confidentiality—for example, if you had a serious medical condition that may put others you had come into contact with at risk

We hold your records in STRICT CONFIDENCE

Who are our partner organisations?

We may share information with the following main partner organisations:

  • Strategic Health Authorities (SHA’s)
  • NHS Trusts (Hospital’s, PCT’s)
  • Special Health Authorities
  • Ambulance Service

We may also share your information, with your consent and subject to strict sharing protocols on how it will be used, with:

  • Social Services
  • Education Services
  • Local Authorities
  • Voluntary Sector Providers
  • Private Sector

Anyone who receives information from us also has a legal duty to:

 KEEP IT CONFIDENTIAL!

Why we collect information about you:

In the National Health Service we aim to provide you with the highest quality of health care. To do this we must keep records about you, your health and the care we  have provided or plan to provide to you.

These records may include:

  • Basic details about you such as address, date of birth, next of kin
  • Contact we have had with you such as clinical visits
  • Notes and reports about your health
  • Details and records about your treatment and care
  • Results of x-rays, laboratory tests, etc.
  • Relevant information from people who care for you and know you well such as health professionals and relatives

It is good practice for people in the NHS who provide care to:

  • Discuss and agree with you what they are going to record about you
  • Give you a copy of letters they are writing about you, and
  • Show you what they have recorded about you, if you ask

How your records are used

The people who care for you use your records to:

  • Provide a good basis for all health decisions made in consultation with you and other health care professionals
  • Deliver appropriate health care
  • Make sure your health care is safe and effective, and
  • Work effectively with others providing you with health care

 Others may also need to use records about you to:

  • Check the quality of health care (such as clinical audit)
  • Protect the health of the general public
  • Keep track of NHS spending
  • Manage the health service
  • Help investigate any concerns or complaints you or your family have about your health care
  • Teach health workers and
  • Help with research

 Some information will be held centrally to be used for statistical purposes. In these instances we take strict measures to ensure that individual patients cannot be identified

 We use anonymous information, wherever possible, but on occasions we may use personal identifiable information for essential NHS purposes such as research and auditing.

 However, this information will only be used with your consent, unless the law requires us to pass on the information.

 Notification

The Data Protection Act 1998 requires organisations to notify the Information Commissioner of the purposes for which they process personal information.

You have the right

 You have the right to confidentiality under the Data Protection Act 1998 (DPA), the Human Rights Act 1998 and the common law duty of confidence (the Disability Discrimination and the Race Relations Acts may also apply)

You also have the right to ask for a copy of all records about you (a fee may be charged)

  • Your request must be made in writing to the organisation holding your information
  • There may be a charge to have a printed copy of the information held about you
  • We are required to respond to you within 40 working days
  • You will need to give adequate information (for example full name, address, date of birth, NHS number etc.)
  • You will be required to provide ID before any information is released to you

If you think anything is inaccurate or incorrect, please inform the organisation holding your information

If you require this information in a different format or you need further information or assistance, please contact Mrs Sally Rees, Practice Manager.

How We Use Your Health Records leaflet

Enhanced Data Sharing Model...WHAT DOES THIS MEAN?

You may be asked when you contact the surgery if you are happy for your medical record to be shared with other NHS agencies to whom you may access, or be referred, such as A&E, Out of Hours GPs, District Nurses etc and also for your GP to see information recorded about you by these other NHS Agencies.

This is because we use a computer system called SystmOne which has the functionality to allow sharing of medical information contained in your record with other authorised users with your consent.

It is important that we record your consent to share this information as this means that when you access these other services they will have immediate access to information which could help them treat you such as your allergies and recent medication. Giving your consent now means there will be no delay in the clinician being able to access potentially life-saving information when you are ill.

Allowing your own GP to see information recorded by other agencies means that we can continue to treat you with full knowledge of treatments or care you may be receiving from other places. It could be very dangerous for your GP to issue a prescription without knowledge of medication that you may have been issued by another clinician.

If you have not yet been asked, but would like to define your consent or dissent to this sharing of information, please contact the receptionists at the practice who will be able to record this for you.

 

For further information please see the leaflet below  

 

 eDSM_Patients_Guide_v1_01.pdf



 
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